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February 19-21 Pre-Transplant Testing

We arrived in New York on Sunday 2/19/06 in the early afternoon.  Since we had some time, we decided to go to the Natural History Museum. When we got there, Randy said that this was probally not a place that Dr. Boulad would have picked because there was so many people ! Near the end of our visit Will started to complain that his throat was hurting. 

On Monday, (2/20/06), Will had an EKG, pediatric echo, pulmonary function test and Dental visit.  We met with the social worker who discussed places to stay during transplant and also gave us a tour of  the transplant ward.  Then we waited to see Dr. Boulad.  By this time Will had a fever so they took a  blood culture and then gave him antibotic through IV.  They gave us a tentative admission date of March 16. All the test results are good. They did not show any signs of infections or abnormalites.

On Tuesday, 2/21/06, Will had several CAT scans.  We then met with Dr. Boulad to discuss Will’s current condition and also the upcoming transplant. 

Well today we got the news that we have been waiting 8 years for.  Will’s transplant date is set for 3/24/06.  His donor will donate on 3/23/06.  This will be an unrelated 10/10 match.  We know very little about our donor.  We do know that she is a female and over 50.  If everything is successful and if she agrees we will get to meet her after 1 year ! 

Just so that everyone knows how this journal will read.  The -day will decrease until the actual transplant day and then it will be a +day and will increase. 

We will try to post to this journal daily so that everyone can follow the treatment and Will’s progress.

Thanks for thinking about Will !

Randy, Nancy, Will & Bonnie Sue