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Randy & Will traveled to New York on Sunday (2/26/06) and spent the night at the Ronald McDonald house(RMH). Will was scheduled for a bone marrow aspiration on Monday.  By the time, they got done with this procedure the lab was closed so Dr. Boulad said he would call if there was anything abnormal. 
Randy is really having second thoughts about the Ronald McDonald house. It is a very old facility and does not appear to be clean or germ free by any stretch of the imagination.  It is possible that we could be at the RMH for 5 months or longer and Will will have an immune compromised system. We know other families have managed so we will too. 

We appreciate all the love and support we have !  Thanks for checking up on us and please continue to do so…..Randy, Nancy, Will & Bonnie
 

February 19-21 Pre-Transplant Testing

We arrived in New York on Sunday 2/19/06 in the early afternoon.  Since we had some time, we decided to go to the Natural History Museum. When we got there, Randy said that this was probally not a place that Dr. Boulad would have picked because there was so many people ! Near the end of our visit Will started to complain that his throat was hurting. 

On Monday, (2/20/06), Will had an EKG, pediatric echo, pulmonary function test and Dental visit.  We met with the social worker who discussed places to stay during transplant and also gave us a tour of  the transplant ward.  Then we waited to see Dr. Boulad.  By this time Will had a fever so they took a  blood culture and then gave him antibotic through IV.  They gave us a tentative admission date of March 16. All the test results are good. They did not show any signs of infections or abnormalites.

On Tuesday, 2/21/06, Will had several CAT scans.  We then met with Dr. Boulad to discuss Will’s current condition and also the upcoming transplant. 

Well today we got the news that we have been waiting 8 years for.  Will’s transplant date is set for 3/24/06.  His donor will donate on 3/23/06.  This will be an unrelated 10/10 match.  We know very little about our donor.  We do know that she is a female and over 50.  If everything is successful and if she agrees we will get to meet her after 1 year ! 

Just so that everyone knows how this journal will read.  The -day will decrease until the actual transplant day and then it will be a +day and will increase. 

We will try to post to this journal daily so that everyone can follow the treatment and Will’s progress.

Thanks for thinking about Will !

Randy, Nancy, Will & Bonnie Sue